Categories
Health Care Massachusetts Medical Money

Drugs and Change

Recently I got an ear infection. Not shocking, given my childhood propensity for them and the fact that I’ve been almost continuously sick since Sadie started kindergarten in September, culminating with and resuming after a quick bout of flu and about two days of feeling better than I can remember feeling since… I don’t know. Possibly as far back as 1977. Yet shocking in that I’ve tended not to have ear infections as an adult, or even as an older child. I used to have respiratory infections every couple winters, but my ears have never behaved like this.

I’d had the normal sniffles and stuffiness. In a meeting before work in the wee hours, I was especially stuffy. Near the end of it, fluid started dribbling out of one of my ears. Freaky! It kept doing so during the shift, then I went home and searched online for the symptom and what the properties of the fluid meant. Clearly it was not cerebrospinal fluid and I didn’t have meningitis. I didn’t even have a fever.

That was Saturday. I ended up going to emergency care at my doctor’s practice on Sunday, seeing an excellent doctor and getting diagnosed officially with a middle ear infection. That meant antibiotics, which were a bit slow but did clear it up. It stopped briefly right after I started those, but then the leaking ear went on leaking for a few days.

More importantly, this was the first time I had been to a doctor since last May. I’d been shirking, since they like to monitor my blood pressure regularly. Because I simply couldn’t afford to go! We got kicked off of MassHealth as of the end of 2009 for having the audacity to have low enough income to qualify, but an employer who offered insurance we couldn’t afford to buy or use. That’s just the two of us, not the kids, who remained fully covered, because we had low enough income to qualify, but…. what? Insurance from the employer that would have cost too much wasn’t good enough for them, just for the adults? In reality, looking at the rejection, there was some level of care they covered even for us, but it was unclear how to use it. Apparently it was a safety net thing where the doctors and hospitals were supposed to figure out what not to charge us for or something. Also, other people who were required to buy insurance got part of their insurance cost reimbursed at borderline levels of income, but if we were supposed to once we obtained it, I was never aware of that. Perhaps this year, if they ever get back to me, they’ll be clearer. That’s a whole other story, the kids being thrown off and our having to reapply from scratch. They’re seriously taking their time, and we’re overdue for checkups for two kids. Ugh.

Anyway, our insurance meant the first 12 visits to the doctor, or a lower number and some testing, since that’s not unusual, would have cost me entirely out of pocket. I can totally afford 10% of my income before insurance starts to pay 80% of the cost. Yup.

Plus I’d been off and on, mostly off, the three blood pressure meds since early 2009. When I saw the doctor the last time in 2009, I took the drugs for a couple weeks ahead of time, enough to have a passable blood pressure but have him mildly concerned about edema. See, the meds made me feel like crap, and left me almost unable to work. I’d take them, and after a fairly short time the managers would wonder why I was so darn slow. I’d wonder why I was so darn slow, and my brain didn’t work right. Not that this should have surprised me, since one of the meds was a beta blocker. The second doctor to treat me for hypertension avoided giving me beta blockers because they affected me so badly the first time. Arguably I lost my very first tech support job because I was on one. I couldn’t remember anything, couldn’t think as clearly as I ought to be able to, and had a total lack of ambition that went beyond ordinary levels of lazy or disinterested. Took me a long time to blame it on the pills, and I seem to recall that was only when I stopped taking them and transformed back. The second doctor to treat me was happy if he could keep me from going much about 150/95. The next time I went to that practice , seeing a different doctor because mine had left, after being off meds a while my pressure was 185 or something and they flipped. I sat in the waiting room for hours, waiting for meds they gave me on the spot to kick in and lower my BP enough that they’d let me leave. I don’t remember what that doctor gave me, but he specialized in hypertension and set out to determine a root cause.

I don’t generally consume inordinate salt, don’t seem to be affected by it, and am aware that they’ve found minimal correlation, even though doctors still ask. I believe they have figured out 1/3 of people can go higher on account of salt, 1/3 are not affected, and… 1/3 go down! I did 24 hour urine samples for levels of catecholamines. I got an MRI of my kidneys, looking for pheochromocytoma. Nothing. My current doctor, technically the fourth to treat this, also found nothing, in part taking my word for the prior guy’s findings, since the other practice never passed along my records when asked.

Nor did anyone find damage as a result of the high blood pressure, in the past anyway. I was already about to the point of going back to treatment, sure I was being affected by it. I started losing my eyesight when we switched to compact fluorescent bulbs, but I’m not convinced BP hasn’t been a factor. On the emergency visit for the ear infection, my blood pressure was 210 over… now I forget, but not as high as my record 220/140. 120 or 110, this time. Naturally this got me an EKG, and skepticism about my chest congestion pain when taking deep breaths being normal congestion. Heck, that’s an old familiar pain to me, the breathing pain. Without being congested at all I’d get it when I was a kid, if I tried to run any distance in elementary school. Singing, bike riding (I miss my bike!) and expanding my lung capacity mitigated it, but it come back now and then.

I was lucky that the doctor I went to on the Sunday let me go with instructions to resume taking lisinopril, the least likely to cause a problem, in an effort to start controlling it some, and to go to my regular doctor in a week to followup on that and the ear. The EKG showed very minimal signs of uncontrolled blood pressure but was basically fine.

On another note, nobody ever finds I have high blood sugar or cholesterol, despite my mother being convinced from the time I was young that I was fat and was going to get diabetes, have a heart attack and die. Knock on wood.

Backing up a little, the very last time I took the combo of lisinopril, atenolol and hydrochlorothiazide was in the fall for a week. After a week it turned my brain to mush and provoked depression like flicking a switch. It was remarkable to observe! Since it had been months since I’d touched the stuff, and it was completely out of my system, it was a clear test. I’d previously observed that, at least at times I tended to get dehydrated from work and weather, hydrochlorothiazide may have been provoking gout attacks. The emergency doctor thought that made sense, and that the actions I ascribed to the beta blocker made even more sense.

About nine days later I saw my own doctor, getting an extremely prompt appointment once I finally called. You’d think they were concerned or something.

My blood pressure was dramatically lower, like 165/100. My doctor was ready to give me an EKG until I noted I’d had one several days before.

I kept me on lisinopril and added back hydrochlorothiazide, but switched me to amlodipine instead of atenolol. To be honest, I thought I’d made my feelings about beta blockers clear when I first saw him and already thought they messed me up, and I thought – and maybe it was true initially – he was not giving me one of them. Eventually I learned that one of them was, and perhaps that was true all along.

Looking up amlodipine after I got home, I was amused to see it is prescribed for angina as well.

A week went by and…. No wait! Two days went by and it was as if I’d become a new person. It improved more from there. The combo, presumably to be pinned on the amlodipine, almost seems the opposite of a depressant. Since it worked that fast and with no side-effects, I suppose I shouldn’t be surprised that the one day I forgot to take the pills caused a bit of a mood crash. There’s incentive! Skip a day, go all gloomy for two days before returning to normal? Naw, I think I’ll just keep to the regimen, thank you. My vision hasn’t improved. If anything, it’s worse. However, something else I suspected was affected by blood pressure went away, and the ear problem stopped dragging on, as it seemed to be. Google seemed to suggest that the ear symptoms could be tied in with blood pressure, apart from the fact of a very real infection.

It’s hardly perfect, since how glowingly happy can you be when you’ve gotten in a life hole with canyonesque sides, but I’m optimistic and energetic and alert and awake in a way I haven’t been for the most part in years. Not sure it was this good in the parts of 2003 and 2004 when I wrote about being on Lexapro. Who knew I needed it to counter the blood pressure drugs! Could have avoided the whole thing. I’ve also had some insight that goes deep and may help explain the blood pressure problem’s roots, while also helping me move on, but that’s another story. Time to make supper!

Categories
blogging Business Geekery Health Care Humor Job Hunting Medical Money Music Politics Totally Random

Link Dump 2

Continued from and explained in Link Dump 1.

Schoolhouse Barack

Eggless batter for deep fried shrimp (works nicely for chicken, came out just like Chinese chicken fingers but that Henry can eat, moved from this to lighter tempura style)

It’s just a draft

Efficient markets after the financial crisis

RIP Fess Parker

Do you think you love me?

Controversial propositions (some good ones! including Bobby Orr)

The shocking ages of rock stars

Ethiopian Injera recipe and another and another and a detailed post about making it

Nerd, Dork and Geek explained in Venn Diagram

The parable of the satellite dish

Alien Versus Pooh

Latters to Scalzi, Pt 2

What if the jobs are never coming back?

Shy and introverted process the world differently

Quasars don’t show time dilation – what’s up with that?

Fighting allergies by mimicking parasitic worms

The whiskey standard

How to wreck a marriage

Truth in accounting (Madoff vs Social Security)

Massive tax change hidden in healthcare law

11 Music superstars who are technically one hit wonders

Most people carry neanderthal genes (big surprise!)

S&P Priced in gold

Creating a more private Facebook alternative

Caring for woulds when medical system has collapsed

Doubt cast on many reports of food allergies

Categories
Health Care Kids Medical

Cast Off

Monday Sadie got her walking cast off, got still more X-rays, and was allowed to leave cast-free. Yay!

She faces 10 days of taking it easier than normal – walking on even surfaces, no roughhousing, nothing athletic, going in a pool if she wants – and then we’re really done. Unless she remains sore and stiff, in which case the doctor wants her back to see him.

It took her over a week in the walking cast before she started being comfortable getting around by herself, and by the end she was just walking away, just with an odd gait due to the cast. Now it’s her ankle and lower leg, but she is already making an effort, and now understands it needs to be exercised to be back to normal.

What a relief! It’ll be just a month from start of school when she is all the way to normal.

The weird thing is the hair.

Apparently it’s normal if not universal to experience heavy hair growth under and around a cast. From above where the original cast ended down to her shin is a mat of fur that would do my leg proud. I’d thought her knee was inexplicably dirty , then it became clear with the worst of it visible after the cast was gone.

She got the genes for hair to begin with, and of course the cast covers it and it does tend to be darker. But it’s actually thicker, dramatically. From what I found online, the cast irritates the skin under it, which stimulates blood flow, which stimulates hair growth. Never heard of that!

Categories
Health Care Kids Medical

And We Mean It!

[I originally started this post a week ago last Monday, July 12, got interrupted, never finished and posted it, and so here it is. Not bothering to edit the timeframe up to the point I’ll indicate I am adding to it.]

Took Sadie to get her three week cast off today. She was freaked out by the saw, so much she took most of the way through subsequent X-rays to get over it.

The X-rays showed it healed well, as expected.

What I didn’t know to expect of the followup was a “walking cast.” For 2 weeks she has another cast, but this time starting below the knee, going well onto the foot, so her knee can bend and she can walk. She also has a “boot” to strap on, rather than walking on cast and toes.

Today I had to continue carrying her. She can try walking tomorrow.

After the two weeks, it comes off and she really should be done. In the meantime, it’ll be tough

[Continuing from where I left off, and updating to what’s current.]

I think I was going to say it would be tough because we had a pool party to go to, and she would be unable to swim, or maybe it would be tough because we were going to dental appointments in Boston on the 14th, which had I realized she would get the additional cast I might have postponed.

The pool actually helped derail her funk, in which Sadie wouldn’t even try to walk, and was happy to sit and do passive things. She ended up on the side of the pool, cast covered in a towel, other leg dangling or a hand reaching in water to play with it, and playing with cousins. She got so happily soaked, she might as well have been in the pool. But the cast stayed safe!

It still took until yesterday for Sadie to get up and walk around the apartment by herself. She found it painful, stiff and – it still is – awkward. At least this means I am freed up extensively, and the transition won’t be so tough Monday.

As for the dental appointment, because she couldn’t get around readily, and there was some distance involved, I used the umbrella stroller, which works well as a wheelchair of sorts. We were very late getting into the place in Boston, but they squeezed us in before breaking for lunch. It’s very efficient and the people there are awesome. All three kids got a clean bill of tooth, and we don’t have to do this again for six months, assuming nobody develops a problem. Valerie is the best one at dealing with the dentistry, amazingly, because they are her heroes. When I took her there with a lost filling and some pain, they patched it up and it demonstrably didn’t hurt anymore. She raved to her mother that the dentist made it better. Sadie had to be big but wasn’t happy, since Henry had to be held and freaked a bit. Though even he is used to opening wide for having me brush his teeth, so he did pretty well. That and he’s so darn bright and good at following instructions, when he’s not being intentionally stubborn.

But back to the leg… We go Monday, July 26, get the cast off, and from what they said, that is that, not even yet another set of X-rays. As I was saying with the title, the walking cast seemed like kind of an “and we mean it” thing to be sure all was healed and well, and protected with an exoskeleton for a bit as it got used to being in use again.

Categories
Health Care Kids Medical

One More Day!

Or so I hope!

Tomorrow morning I take Sadie to get her cast off and get X-rays.

Presumably that will be it, and we will return home triumphantly cast-free after three weeks. Via some errands. And a trip by my mother’s house, if I leave the other kids there. Among whatever else, I plan to use it as the day Sadie gets to shop for new shoes. Hers are beat, to the point of getting holes in the toes, and I hadn’t been able to find her presumed size (next one up) in that model on a couple casual looks. This way she can participate and try them on, so if they don’t have size 13, maybe we can try the next size up, which is apparently size 1. Sizing is weird.

She may not care that much, but I think it’ll be nice for her to be able to bathe normally, and not just because it’s a pain for me. At least that is infrequent, compared to carrying her to the bathroom or between locations in the house. It’s been helpful that she entertains herself in place easily.

It’ll also be nice for her to be able to swim, or at least go in the wading pool at Grandma’s. We have a couple pending possible pool visits. Yay!

Anyway, I’ll update here with the outcome after we are home tomorrow…

Categories
Health Care Kids Massachusetts Medical Money Politics Stupidity Totally Random

Official Shit List

Mitt Romney
MassHealth
Healthcare Financial, Inc.
Thomas G. Gennis
The voice “talent” of Signature Healthcare’s phone system
The designer of Signature Healthcare’s phone system
Heck, the designer of MassHealth’s phone system
Downstairs neighbor
Upstairs neighbor
Anyone who calls us after 10 PM tops when there’s no deaths in the family or such
Probably a bunch of others not as close to the top of my mind.

Categories
Controversies Health Care Massachusetts Money Politics

ComneyCare

I have decided to call the communist state health plan by the evil Mitt Romney and gleeful Democratic legislature, commonly known as RomneyCare, ComneyCare for short, so I don’t have to write out the communist description. But I pregress…

A while back, we were arm-twisted into applying for MassHealth (the official name for ComneyCare) by HFI, Healthcare Financial, at the behest of Morton Hospital, apparently because we could be covered retroactively and they would then collect for the emergency visit with allergy boy early this year. HFI is, as far as I can tell, little more than a law firm/collection agency that specializes in just this kind of thing.

We thought it would be nice to be able to get him medical attention if needed, at least take him for a one year checkup and shots. That appointment is set for Thursday, a month late because of doctor vacation pushing things back.

Anyway, I did the applying through the agent, including affidavits and limited power of attorney and so forth, and sent them a pile of birth certificate copies and such. I thought that included the relevant pay stubs as evidence of income, which I did scan at that time and presumably printed and sent.

I’ve never heard from HFI again.

We received notice of provisional coverage of the kids pretty promptly. Apparently they do this because it take forever to process the applications.

That was the last thing we heard.

On the 12th we received notice from a Taunton office, first we’d ever had anything come from there, indicating we were rejected due to lack of proof of income, if they didn’t hear from us by the 8th.

So this is apparently how they are handling the insane budgetary overrun ComneyCare is creating, by arbitrarily making people unable to obtain the coverage they are legally required to obtain or be fined for not having. Go Massachusetts!

Friday afternoon I faxed that Taunton office the entire original 20 pages of application, affidavits, ID, and pay stubs, a WTF letter, and two subsequent pages of paystubs, supplying phone and e-mail for them to contact me. One secret of being sufficiently broke is that it’s a surprising time sink, where people like to make it hard for you to do anything but deal with crap like this, or where you spend time instead of money because time is what you have.

No word yet. Oh, forgot to mention why I faxed. Besides to get the actual paperwork back in someone’s face ASAP.

The number they supply on the notice is not for the local office, where the fax is. The number they supply lands you in a full voice mailbox – can’t even leave a message – and tells you try again later. Convenient, if they don’t want people to actually get the coverage.

Today I need to contact the doctor’s office and see what they want to do about the appointment Thursday. It’s at least $95 if paying cash (which may as well be the moon). We already owe over $700 from apparently far more visits on grace than I realized last October/November. To the extent it’s up to the doctor, he’d probably say come in anyway and not to worry, because that’s him, so it may be the case. Apparently the shots are paid by the state, so it might be possible simply to go in, get the shot, and leave. But if we’re there, the doctor won’t be able to resist having a good look, so it amounts to the show up and don’t worry about it option. What we can’t do is be referred to any dermatology or allergy specialists without coverage. So it’s good thing we have his condition in such good control, and he’s doing so well at acclimating and outgrowing it so some degree already.

Loads of fun. If McCain had picked Mitt Romney, it would have shown horrible judgment, as well as lack of political savvy. Ultimately they’re all control freaks and would-be tyrants to some degree, but Romney showed naked ambition and elitism over sense more than most.

Categories
blogging Business Geekery Health Care Job Hunting Kids Medical Money Quiz or Meme Totally Random

Life Gives Us Deadlines

This is an updated and abbreviated version of a post I have been meaning to write and have a couple times had partially written for weeks, and relates to mentions here (linked by Sarah in this awesome post), and over here, and perhaps elsewhere, like this, and on Twitter.

As you may know, we’ve been financially challenged. Things have become almost but not quite stable on the way to the end of the tunnel. We’re not in immediate danger of eviction for being behind on rent. We can eat. The phone and internet – vital to modern life and in our case making a chunk of money and seeking more – are being kept on. The kids have health coverage and Henry will get his one year checkup and shots – albeit not until almost 13 months old due to doctor vacation scheduling – and that’ll set us on the road to getting an even better handle on the allergy/sensitivity problems, which may also become less critical as he ages. It’s actually been I have no idea what I was about to type a little while ago when I stopped in mid-sentence. I think I was going to say it’s been good I’ve been so available, and that will make working from home a Good Thing, except I must be able to work for that to work which is a matter of some juggling and changes. But I digress.

Have to stop and try to remember where I was going with this in the broader sense. I load my thoughts in my head and risk losing them if they don’t spew right out the keyboard.

Um…

There’s been one big deadline coming at us. The gas & electric can’t be turned off if you have a baby under a year and financial hardship. Henry turns 1 on the 20th. We’ve accumulated most of a year’s worth of balance. In fact, it’s apparently a couple months more than I thought, and the peak bills in the winter weren’t much more than the bills have been this summer. Odd.

We assumed, not unreasonably, that I would get enough work before now to straighten that out and take us the rest of the way out of the basics. As it is, we should be able to cover the current utilities in the future, so it’s mainly about the arrears.

The bottom line is we have to pay at least $1425 by August 22nd to keep the gas and electricity on, and then the other half will be in six installments.

That means needing to come up with about $1000 above what we can otherwise manage.

I have an offer of $150 toward the second installment from a local charitable agency, but not the first, as they have to know the power will stay on and it won’t be wasted dropping in the bucket. That would effectively give me until sometime in October to have gotten the prospective job, or other work sufficient to keep it all rolling.

Someone finally expressed interest in buying the xtremeware.com domain I’ve had for sale for several months, so I thought that might do it, but I haven’t heard back. I just replied a third time, from a different address, making a time-sensitive offer to sell it at the lowest price I can reasonably accept. I’ll probably list it again in a formal service to expedite the possibility and give others a chance if the warm prospect bails. That would help some, if it could happen soon enough. We’re looking at what else we can sell in the next week, focusing heavily on my comic book collection from years past.

For the most part, family isn’t a viable source of help, so I won’t go asking them unless it comes down to, say, the last $100 or so between us and darkness.

At any rate, whatever we could say about how we got here, miscalculating and all that, it’s not as important as moving forward. The consequences, if we can’t keep the utilities on, will be the same as eviction. There are contingency plans for Deb and the kids to stay with a friend of hers. I have no such plans, beyond being acutely aware I still own a tent. That just sets up a much harder scenario to escape, makes it hard to make the money we now make online, makes it hard to get work, makes it hard to take care of the kids, makes it hard to keep Henry’s sensitivities watched and controlled.

I haven’t been eager to say anything by way of asking for donations, as we already got helped once beyond all conceivable generosity. We wouldn’t be so stable now, otherwise. I’m itching to get on the other side of the PayPal button and be able to do the same for others. Surely that’ll come, but isn’t here yet.

This was why I planned to do a fundraising edition of CotC, since that was a different audience and reason – appreciation of the carnival in the past or expression of a desire to have it happen in the future – it didn’t feel inappropriate. My spare time for that never became copious, even though the fundraising aspect made it paying work of sorts. Again, not to reflect on where and why but to resolve and proceed.

So. Anything I receive in PayPal (button at top of right sidebar) will go to the gas and electric arrears until that is paid up or something else is a more immediate threat. I’ll add to this if I see later I forgot something, or will post status updates as appropriate.

The other part of the plan, besides maybe mentioning this in a less frantic way, was a post soliciting micro-work of the sort I can actually do while taking care of the kids and having to fit it into minute or few bursts or sleepy midnight interludes. Ironically, planning that, composing it and so forth didn’t lend themselves to my time and circumstances. While that might not raise what a full-fledged getababysitternow job would, it would have helped. I still plan something along those lines, which was not going to be a mere post, but also a mass e-mail to contacts, some of whom might not even realize I am looking. Even some people I expected were aware things were grim had no idea, so on the periphery, who knows.

Oddly, everyone has left me alone long enough to ramble at length. This is as much as I wrote over the course of a couple weeks in an unfinished post on the topic that reached the point where I wasn’t sure what I’d said and needed almost a rewrite of an edit. However, it’s time to make supper before the kids mutiny.

Update:
We’re down to about $650 $600 $200 needed to make the deadline. Not there yet, but it’s progress. Almost there! Thank you all so much for your links, donations and purchases.

Update on August 19. 2008:

I’ve removed the sticky status from this post and am updating this one accordingly. While things won’t exactly be rosy and we still could use assistance if anyone feels generous (this big push was for half the arrears; it’ll be hard to pay both the installments on the other half and the current bills, if nothing else), with some juggling and astonishing generosity from several people, we’ve reached the immediate goal. Thanks!!

If you do still want to help out, the PayPal button on the top right remains. Deb’s shop still has a few physical items, though it is going largely virtual. We still have books for sale, and may add more along the line. Some have had to be removed after Henry damaged them, which is helpful.

You’re welcome to use the info in the sidebar where it says “Light the power!” to go directly to the gas & electric on our behalf. That’s going to be over $200 a month to catch up, after all, on to of an average of probably $300 a month over the year, with the big ones coming all too soon. That’s anonymous, unless you tell us you’ve done it. We’ll just see that part of the bill has already been paid.

I didn’t end up selling off some of my comics for this emergency, but I’m not attached to most of them, and will probably put many of them up for sale. Possibly right on one of the blogs, or possibly other places. Stay tuned.

I still am trying to sell xtremeware.com, though perhaps I should use that as the domain for selling comics. It has a higher Page Rank now than we do here. Anyway, the auction expires tomorrow, but until then I will accept a bargain reserve price ($500) for the thing. That’s somewhere between 1/2 and 1/20 of what it should bring. I’ll probably put it on longer term offer at a higher price, whether I also sell stuff on it or not. I also have xtremecomp.com potentially available, but haven’t really thought about price.

At any rate, thanks to everyone who donated, linked, and made a point of buying stuff. It was a big help.